Posted 22 April 2008 - 09:17 AM
Posted 25 April 2008 - 11:03 PM
I have experienced the same feeling, all over my body. I have Lyme Disease, RLS, Narcolepsy, Fibro & fatigue, and a host of other illnesses and diseases. I have found huge relief being treated with IVs for Lyme Disease. I take Mag-Chlor by Energique. I've moved from home to another sate to be treated by Dr. Ryser for Lyme Disease. She has saved my life, she didn't think I would make it. But Lyme Disease can act like Narcolepsy, so I didn't get diagnosed formaly by a nerologist until last month. Hope this helps! Oh, also blood thinner has helped me with your symptoms so much!
Posted 26 April 2008 - 02:02 AM
i frequently get it in my arms and shoulders ... so i move my arms to relieve it ... of course i look like a foll at times whirling my arms around but there we go ... i've started taking iron tablets to relieve mine but it takes a while to get into the body so i have felt no relief yet ... fingers crossed
Posted 26 April 2008 - 11:02 PM
I do know of one person who had RLS in her tongue! Sam knows her as well from my site (see signature). It's not too crazy, but doctors will tell you that anyways!
Posted 05 August 2008 - 10:10 PM
Posted 06 August 2008 - 01:19 PM
Like others have said, it can occur anywhere in your body, the name is a misnomer.
Posted 07 August 2008 - 02:50 AM
RLS is Restless leg syndrome right? And I didn't know it had anything to do with numbness???
Here's what it reminds me of...
For at least 10 years now I have had trouble with my wrists and sometimes it moves up my arm and all the way to my neck. What happens most is I wake up without any feeling in my arm(s) and it is like dead weight. I'll have to pick one arm up with the other. It lasts anywhere from a couple minutes to an hour. Typically after this happens I'll be in pain in my wrist and neck for up to a week!
So initially (prior to N diagnoses) my doctor sent me to a neurologist to be tested for carpaltunel... which was negative, but the doctor said "you have every symptom, but you don't have it." By the way my sleep doctor was shocked when he found out 9 years prior to being diagnosed with N I had seen a neurologist and he didn't pick up on it then.
I had an MRI done also back in the day because they thought maybe there was something wrong in my neck... NO my neck is fine LoL!
Anyways my sleep doctor told me it was partial paralysis... he never mentioned RLS. So after reading your posts I'm wondering if these are related...
Just thought it was interesting
Posted 12 August 2008 - 10:22 AM
About a year ago I was having so much trouble with leg numbness I couldn't walk. I literally just kinda plopped one leg in front of the other. I wasn't completely numb, but it was like my legs were asleep all the time. it got so bad I threw my back out from walking like that. Exrays were showing nothing, so I had to go see a nuerologist, (who was wicked hot by the way, to bad he was a jerk) to see if I was having nerve problems. And he decided it was because of stress and smoking to much. he really went on and on about the smoking. He also said I was way over weight. (I weigh 205 but I am tall and have giant boobs so he can bite me. I'm not fat, I'm well rounded!!!)
So kid you not, let me tell you after about four months of this, I was in class and I bent over to get my book bag and there was this loud snap crackle pop, sadly not the yummy kind, that came from my back. Scared my professor to death he thought I broke something. I stood up and all the feeling just rushed to me. And It got this Euphoria type sensation, like it was the greatest thing ever. I cant even explain it. and I have been fine since.
So moral to my story is if they cant find a reason for things, make them keep looking. I'm very lucky I was not permanantly injured.
Dont settle for the your fat, smoke to much, and need a shrink diagnosis. There could be something seriously wrong there.