Posted 10 October 2007 - 09:09 AM
Posted 10 October 2007 - 12:42 PM
Posted 12 October 2007 - 11:06 AM
Posted 13 October 2007 - 03:49 PM
Posted 26 October 2007 - 10:24 AM
I'm positive gluten is the trigger. I was low carb for a long time, it helped, but my symptoms still progressed. I am now in complete remission on a gluten free diet. My recovery was so dramatic I did some research and I think I found the autoimmune mechanism. I wrote a scientific paper about it.
I posted my story here:
If a gluten free diet helps you, please email me your story. I am trying to gather anecdotal evidence to motivate research into this hypothesis.
Posted 28 October 2007 - 09:21 PM
Posted 31 October 2007 - 05:41 PM
Provigil has gluten in it as a binder ingredient.
Posted 07 November 2007 - 12:14 AM
diet? I totally believe nutrition has everything to do with how one feels. Doctors do not want to believe in nutrition because as usual there is too much money involved in dispensing drugs and none with nutrition. I really want to try the gluten free. I have done the no carb and it made some differences. All the things I love are bad for me. I have lived with Narcolepsy for approx. 60 years and have tried many, many things. I would give anything not to be so damn tired all the time.
Posted 07 November 2007 - 01:48 PM
Posted 21 December 2007 - 01:14 AM
Posted 21 December 2007 - 01:16 AM
Posted 09 January 2008 - 06:20 PM
People with metabolic disorders use this site to find the foods they need, and to help manage their diets. I'm there too, as my son has PKU.
It's a wonderful place that gives you lots of choices, and tools to help manage. You can also order gluten free foods there, such as pasta and bread.