46 replies to this topic

[Marcianna]

Well, this may or may not be the best thread to be my 2nd post on the forum, but hey, gotta start somewhere right?

I am a believer in Buddism, as well as other forms of Eastern Philosophy. In many years of personal study and instruction through college, I have never seen anything like what is written in the first post here portraying Buddhist philosophy or Karma in traditionally accepted writings. Teachings from the Dalai Lama himself are very different from what is listed here.

I only felt compelled to post here because we all understand the misconceptions of our illness with people who are unfamiliar; it seems we wouldn't want to continue ignorances or misconceptions of spiritual beliefs either and when I was reading that, even from a purely educational perspective, I thought it just didn't sound like traditional beliefs (some off-shoot or otherwise, maybe?).

PS--I grew up Southern Baptist, so it was my own journey to learn about other belief systems in a search to understand those who were not like me and my own ignorances. Little did I know, that would later include Narcolepsy and Ankylosing Spondylitis...I am no longer ignorant to disabilities as well.

Now then. Exactly. Thank you for saving me alot of typing!

Although I don't exactly buy into the original post, no one here can prove that this is not what is happening. Nor can we prove that it is. It is just one guy with a copyrights opinion. The point really for us to realize, that past lives aside, we are here right now. dealing with the here and now. we need to live in this world not in "the past".

I do find it interesting that so many people got upset about this though. lol. If I wanted to believe it, it would almost prove the guys point.

[Marcianna]

Hey Toph4er, the lama here and I wanted to chime in on your globs moving around. I looked at the photo you posted and the other details and it sounds a lot like Uevitis, which is an eye disease that causes inflammation in the eyes. It can be like looking through a rainy window, or lots of blurry dots all over, or blinding in some cases. It can also cause pheripheral vision damage. The challenge w/diagnosing and treating it is that if you are not having a flare up of it when seeing the eye doc, it is possible that it will not be caught for years, until the damage is permenant. Treatment is generally steroid eye drops and oral steroids for a bad flare up. If left untreated it has the real possibility of causing blindness. I know you had mentioned interest in my AS diagnosis in a different thread and said you have some symptoms and if you do have uevitis, it is a common diagnosis of people w/Auto Immune diseases. It was the first real diagnosis I received and my eye doc said he would bet his practice that I had a full auto-immune disease as yet to be discovered and encouraged me to keep pushing the docs to figure out what was wrong.

It might not be the same thing, but I wanted to get you this info just in case. Btw, the spots, globs, whatever can be seen w/the eyes open or closed. I used to wave my hand in front of my face as if I was swatting something my hubby would tell me it is just your vision, there isn't anything there.

I stay on top of the eye drops, but my peripheral vision is still going, however the drops really help w/the blurry spots, etc.

Take care!

o Really? wow that kinda freaks me out a little! I have seen these things since I was in junior high. like all the time. I just assumed it was a normal thing.

[Marcianna]

Went to doctors cause feeling low had cat attack whilst trying to get my point across of how low my mood is at the moment, Flipping sent me straight to A&E to phsyciatric evaluation. What the f*** is that about. Just because I don't go away after getting my meds they trying to put me in mental ward for the second time, but cause I am not willing cause of past experience, To cut assesments etc down for you's, if I keep going in really low ,sometimes in tears due to everyday life and effects of meds,moods, dreams they don't know where to put me and cuase like I said I ain't willing to go in mental health unit, I could end up being put on a 28 day section. So this is how the people you are ment to go to WHEN THEY DON'T HAVE ANY ANSWERS FOR YOU THEY SHRUG YOU OF TO THE NEAREST PLACE WHERE YOU WILL BE FORGOT ABOUT, MAKING THERE LIFE EASIER NOT MINE.
Twats, Just cause they want to go and play golf and stuff.
Well at present I need my meds to keep me here, but all these so called doctors specialists, can all sit on my middle finger,mind you(they'll probably enjoy it).
people on this site and others show more support and advice that what I have ever had from them guys that think there better than us cause they have them white jackets, Well i'm gunna buy me own.
Anyway all those who have replied or giving me advice THANKS.
ESPECIALLY BAGPUSS FOREVER GRATEFUL

lol. I sooo know what your going through! I am apparently BIPOLAR and they wanted to give me pills and pills and pills............ HELL NO.
the thing is those pills actually make you sleep more. When I first came here I was really angry and depressed because of my diagnosis's, but since I quit taking the meds, I am feeling so much better. I no longer feel like I am wasting my life tucked into bed. psych drugs are bad for you, good for the pharm companies and all their stock holders. Depression is a part of life. we all have ups and downs. some worse than others. drugs are not going to save you. you have to make a conscious effort to choose to be happy, and know that it will pass. lol... regardless of how you were in a past life!

[Marcianna]

With an open mind, I have been "zenning" on the emotional aspect of it all and I must say, to some degree, a lot can be attributed to "emotional state" (past lives, pfft, hehe, but anywhoo).

I'm starting to realize that i'm "afraid" to fall asleep: Normally, the instant I close my eyes, the blue blobs start and morph into some subconsciously generated image (almost like I have no control over it and I'm just watching movies). I can then manipulate if I want to, but I find if I let it just "happen" then the next phase is "easy". Before realizing it, all is ultra-vivid and I am "inside" with the dream and then I am asleep -- sometimes I can remain lucid and "play along", sometimes I slip into the next "phase" of sleep (whatever that is for me, I don't know! LOL)

Now, there are rare times when my mind is clear and I close my eyes to pure black. After some time I have this absolutely terrifying sensation that I am falling into the abyss and startle myself awake. I suspect that this may be falling asleep "the normal way", but i just cannot deal with it! I have a paranoid sense that if I allow the sensation to progress, I will die -- horrible, but honest.

I can recall this same sensation when going under for surgery (I've had 15 to date for various things, multiple times in the first couple years of life for cleft palette/lip repair). Thinking out loud -- as I have been writing this -- it's dawned on me!!! Is the cause of my issues anesthesia???? Ponderous: it would be extremely freaky if EVERYONE with this condition has had some sort of major surgery in their lives (or have had been administered those types of chemicals to force sleep/coma - eg accidents and the like)????

That does it, look for a poll on surgery coming to a forum near you!!! LOL

HEY -- ANY DOCS READING THIS ?!? -- THOUGHTS? (is this quackery or a possibly valid theory?)

OOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Where is this poll?
Has this topic been addressed somewhere else or should I just reply to this here?

[petra]

Hi Damian,
My GP laughed when I got C from him being verbally aggressive, so I moved practice. My new doctor is like a whole different species.
Yes, I want to be doing all of the speaking for myself too.
I'm looking for someone to come with me to sit there quiet, and not interfere, but who can stop all the stupid things Drs do when I get C. GP's fine, but some consultants I see aren't. Haven't found this wonderful patient person yet, maybe I'm talking about a guard dog.
Petra

[Damian]

Hi Damian,
My GP laughed when I got C from him being verbally aggressive, so I moved practice. My new doctor is like a whole different species.
Yes, I want to be doing all of the speaking for myself too.
I'm looking for someone to come with me to sit there quiet, and not interfere, but who can stop all the stupid things Drs do when I get C. GP's fine, but some consultants I see aren't. Haven't found this wonderful patient person yet, maybe I'm talking about a guard dog.
Petra

hi petra
Glad you found another doctor that is discraceful.These are one of the people you look to when you are in need,what is going on with the medical profession.
Damian

[mtc]

OMG!!! this is the kind of C--- I have heard over and over in different forms!! It makes me sick!!! Not only do people with Narcolepsy, or any other disease for that matter, have to live with their limitations but feel guilty about it too!!!