32 replies to this topic

[kogeliz]

Hi All,

Not sure how many made it to Albany over the weekend...
I went with my boyfriend and arrived Saturday morning.

This was my first conference, and it was great to see some many other PWN.
All ages, races, sexes, etc.
A lot more people that I had thought.

Dr. Michael Thorpy was a great speaker and spoke about narcolepsy, research, medication, etc.

The film crew took a bit getting used to... but after a while, it was fine.

Looking back, I wish I would've been more social and talked to more people... but I was tired. !

[Andrea Egan]

Thanks for the overview. I wish I could have gone (no time or $$$$)... Looking forward to the October conference in MILWAUKEE!

[gladtoknow]

I was there also. It was my first conference and I am soooo glad I went! It was such a wonderful experience. I met so many fantastic people and learned a great deal. It was especially nice feeling so "accepted." I had to remind myself that it was ok to close my eyes for a minute during a workshop or that people wouldn't look at me wierd if my brain couldn't find the right word I was looking for. Finally, a place where a PWN could truly "be themselves" and not worry about being judged!

I am really looking forward to the October conference now. Thanks so much NN for putting these conferences together!!!!!

[kogeliz]

It was especially nice feeling so "accepted." I had to remind myself that it was ok to close my eyes for a minute during a workshop or that people wouldn't look at me wierd if my brain couldn't find the right word I was looking for. Finally, a place where a PWN could truly "be themselves" and not worry about being judged!

I know! I didn't have to worry about looking disinterested or "inappropriate" (slack jaw, eyes sleepy, etc.). And between sessions (or during), I could slump on a chair/couch in the hallway and it didn't look weird.

I am not sure if I will make it to the big conference this year. Airfare+hotel+conference fees+dinner can kinda add up moneywise!

I guess next year they'll be having it in one of the Carolinas...

I hope they have it in Boston again (where i live) or maybe Tampa one year (family & friends live there).

[greatbig47]

I was going to wait until after my nap (I just got home)...but I have a couple pics I can post...I call these:
NN's Spring Mini..."A Self Portrait"

I hope you enjoy....

[Lovemyhusband]

Sorry I missed it. I would have loved to meet some of you.

Stu those pics are great.

Maybe we can make it next time!!

[kogeliz]

Ha, great pictures and captions!

I took tons outside -around Albany- but I kept forgetting to take pictures inside.

I think I have two. And one is a picture of the 'nap' room but the way the lighting was... it looked like a room of mental patient beds in a dark cellar.

[sleepylisa]

Thanks for the pics and updates. I almost made it to the conference but had a little trouble with coordinating childcare for my son. I'm really looking forward to the October conference and meeting some of you!! --lisa

[Cryopathic]

Yeah The conference was Really, Really good. I met so many new people it was just awsome.

[Toph4er]

Hehe, a "nap room", smart idea, how tough was it to find a bed?

[Cryopathic]

Not that hard. My friend Sam went to have a nap and she said it was lovely.

[kogeliz]

Not that hard. My friend Sam went to have a nap and she said it was lovely.

It was.
Beds were comfy. No one was in there when I took a short nap. Although I woke up to a super loud maintenance walkie-talkie thing... and a camera crew.

[sleepyavon]

Man, wish I could have been there! I went to the Dallas NN conference and it was fun! I am really happy you had a great time, and I so know the great feeling of being accepted and for once, NORMAL... everyone is sleepy and naps! lol

[Toph4er]

Sam Toombs from England, or a different Sam? She was one of the people sent with he documentary group. Since you said they were "comfy" can I assume they were better than the cots I was picturing?

I really wish I could have gone. It seems like it was a lot of fun. Maybe another one, have to get all my schooling settled first .

Chris"Toph4er"

[Sam.Toombs]

must have been a different sam because i went upstairs to my hotel room, bit more privacy just in case i snored ... which i don't but you know - better safe than sorry!

[Toph4er]

Haha, it seems you found me here , I'm glad you enjoyed your stay in the States, in Yank town no less .

[Cryopathic]

must have been a different sam because i went upstairs to my hotel room, bit more privacy just in case i snored ... which i don't but you know - better safe than sorry!

You said you went to the "NAP" room. hmmm... Me confused?

[Sam.Toombs]

You said you went to the "NAP" room. hmmm... Me confused?

i went in there and it seemed nice but every time i went for a nap i qwnt to my room and without exception everytime i fell asleep, either Nick or Anna woke me up ... GRRrr ...

Sam

[Cryopathic]

oh.

[Cryopathic]

And what is your theory of perpetual cataplexy?