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[sfchaz]

I've been dealing with Narcolepsy for about 3 years. Also went thru' a phase of very severe Sleep Apnea which somehow seemed to resolve itself. I have just been diagnosed with Autonomic Neuropathy and must deal with Chronic Pain. And, just to keep things more interesting I learned a year ago that I am Bi-polar. My Narcolepsy med regime has been 90 mg Adderall, 36 mg. Concerta, 600 mg. Provigil, and 80 mg. Strattera: all taken in the a.m. Most days I take my meds around 7 a.m. with a light breakfast & coffee and then find that I have fallen asleep at my PC or wherever about 2 hours later (this amazes my neurologist, who says I'm the only pt he has seen who can sleep on 90 mg. Adderall.) If there is a med. appointment to which I must drive in early a.m., the only way I can do so safely is to add a 10 mg. 'emergency' Adderall. In any case I also take 400 mg. Provigil in the afternoon, and even with that I am still subject to hypnogogic hallucinations. So, I am > PDR max for Adderall and for Provigil & still subject to 'accidental' naps at dinner, etc. I will not go out in the evenings at all any longer. My M.D. just 'temporarily' stopped the Strattera and the result has been that I find myself hallucinating frequently (which is terribly uncomfortable for me) and nodding off in the middle of tasks; generally letting the disease have the upper hand with the result being very low quality of life. I also take Depakote at nite for Bi-polar, but it has never induced somnolence. As my CPS has increased I am on 60 mg. Opana, which may cause a little fatigue, but my clear sense is that my Narcolepsy is, for some reason, quite virulent and drug resistant. Has anyone else found they have had to 'go off the charts' for a period of time to function? :shock: