Hi, my name is Lisa...I'm new at this so please bare with me...(I tried posting once but I got a message I was posting SPAM?)
I just turned 30 and was diagnosed last month. Finally I have an answer to why I have been "tired" for the last 15 years...I actually thought I was dying of some horrible disease that no one could figure out. Tragically, my new found joy has been short lived. I thought my diagnosis was the hard part of the battle and that now I could get the right meds and get my life back. That has now been the case. My Dr. put me on Ritalin, 30 mg a day. I was feeling more "awake", but the side effects were making me wish I wasn't. I was so mean, agitated, and angry that I couldn't function. Noise irritated me, and I could barely take care of my Autistic 3 yr old son.
My Dr. is trying me on Adderal (XR) 20 mg, which seems to be a little better but the urges to sleep are still very strong and I supplement throughout the day with Red Bull. The worst part is now when night comes and my son is sleeping and I can actually go to bed, now I can't sleep, and wake up a lot during the night. I'm so confused. I am terrified of lowering my dose b/c I am still really sleepy, but I feel panicked when it's the middle of the night and I can't sleep. I'm so confused and desperately trying to change my life...the EDS has been so bad my husband has been thinking of taking our son and leaving me. He's also not very understanding to all this...he thinks I "created" this diagnosis of Narcolepsy as an excuse to sleep more...he just thinks I'm lazy and a bad parent. I keep telling him "Give these new meds a chance" or "Just give me one more month to figure this out".
I know this is really long and thank you for reading this far. I have just been so tired for so long and finally know the reason, but don't know how to fix it...now my relationship is on the line. Does anyone out there have any suggestions on meds?? I want to try Desoxn but my Dr. says that's very rare that someone needs it and he only has a few patients on it...only the worse cases. I feel like my EDS is so out of control, it's ruining my life...I can't get a job, go back to get my Master's, raise my son or maintain my relationship. How bad does it have to get?? It can't get much worse? There has to be someone who can help me!! Please.
Newly diagnosed, all the side effects but no benefits...help
Started by
Guest_sleepylisa_*
, Mar 25 2008 03:06 PM
6 replies to this topic
#2
greatbig47
-
- Members
- 553 posts
www.newrolemodels.com
- Gender:Male
- Location:Greenville, Michigan
Posted 26 March 2008 - 01:55 AM
Whew...wow...Sounds like you got a lot going on there!
You took the time, and were brave enough to open up a lot here. You are searching for some answers, and while that might seem like a little thing, IT'S HUGE!!!! Seriously...give yourself credit for that one.
I'm not a doctor...Geeze, I don't even play one on TV! But I highly recomend you talk to a certified sleep specialist. As well as your Doc's intentions are, if he hasn't mentioned meds like "provigil" or "xyrem" at all to you as a possible option, I'd ask him if he would PLEASE work with a sleep specialist when it comes to figuring out the med situation. DON'T throw him to the curb, but invite him to help with the solution. It's important that even the doctors that THINK they know be educated. It could help others in the future.
What works? Provigil and a little bottle of love I like to call "5 Hour Energy". It's a huge shot of the B Vitamins that makes me one naturally happy camper! But here's the important part of this info...This is what works FOR ME! Some of us here HATE provigil. You might think it's the greatest thing since Red Bull (hehehe...red bull can be cooooool). You might hate it. There are some on the board that love Xyrem. Others just can't do it.
PLEASE talk to a sleep specialist. Ask about Provigil. Ask about Xyrem. If you haven't done the sleep-testing yet, do it! You might have to go to the doctor while sleeeepy. You might have to put up with them (painlessly) gluing wires to your head. They may take your blood. It may be a complete pain in the ARSE, but it is completely worth it! Sleep Specialist can get a wealth of info from these things. The info they get can make your journey to finding the right meds MUCH easier.
Oh...and my very good friend SleepyLisa...Let's get a couple things straight....
1) If you need a Red Bull...There's NOTHING wrong about that! Like I mentioned, I'm a fan of a product called "5 Hour Energy". I hope that if I mention the product enough, they will send me a lifetime supply.
If your going to enjoy the benefits of such drinks and supplements, realize that what you are putting in your body is worthy of paying attention to. This means if your going to be putting massive sugar, frutose, sodium and/or caffiene in your body, it's best to be aware of this and base your decisions on what info you have.
2) As long as you keep convincing yourself that you can't get your masters, you can't get a job, you can't maintain your relationship and you can't raise your son....guess what your not going to be able to do?
OF COURSE YOU CAN DO THESE THINGS! Otherwise you probably wouldn't have brought it up, eh? Not only can you do these things, but you'll probably set a new standard on how they should be done. In order to get where you want to be, you have to stop thinking about where you DON'T want to be.
Don't swap the "can'ts" with the "cans"...I think it's easier than that.
See yourself getting your Masters (How freaking cool is THAT!?!?!). Imagine getting the perfect job (go ahead...I dare ya!). Imagine learning through your condition enough strategy to help your son go above and beyond his (could there BE a better gift a Mom could give her son?).
Allow yourself to think these things! Embrace these thoughts! These are the stars and markings on your map of life...and it's a good feeling to know where you are going, right? NEVER feel guilty for these thoughts (funny how we do that sometimes, isn't it?). Get in touch with the joy involved with these thoughts, and seek 'em out. Hunt your thoughts of ideal happiness ruthlessly...It's a hunt that ALWAYS pays off.
You ask "How bad does it have to get?"
Wow...I remember feeling that.
How GOOD can it get?
THAT'S a tougher one to answer.
I can't wait to see the answer
Even if it takes 60+ years, I bet the answer is going to be REALLY good!
You also said "You don't know how to fix it"
There's nothing to fix. You are not broken. I can only imagine how that feels! Maybe instead of trying to fix it (being your life and situation), can you imagine it more like "getting the tools" to make each day better than the last?
It sounds like you have had a heavy dose of feeling broken. Is there any feeling worse? Face it, everyone has probably felt like the world around them is broken, and can't be fixed.
What I have found in my personal life is that when it all feels like it can't be fixed, I realize that I am basing that thought on stuff that has already happened. I forgot to factor in the stuff that HASN'T happened.
Sure, it could get worse...but if you accept that, you also have to accept that it could also get AMAZINGLY better.
hehehe...and you thought your entry was long
I think an inside definition needs to be created...
Wakey (Way-kee): Noun; Someone that thinks narcoleptics are just making it all up. Someone that thinks our narcolepsy is the exact same thing they experience early Monday morning. Someone that sees us as being "lazy".
There's nothing wrong with your husband, he just doesn't get it. From his stand point, it makes sense. I can understand why your everyday garden-variety Wakey would think what they do. They, too, are also very capable of basing what they know on everything in the past...
My 2 Cents...
Take him to appointments, ESPECIALLY to an appointment with a sleep specialist. This can't be done to prove him wrong. Proving him wrong is not NEARLY as good as having his help. When we get all kinds wacky chemicals in our brains, we need all the help we can get...but you HAVE TO ASK FOR IT!
It's not too much too ask, really...
Help remembering Meds.
Help not letting the condition drag you down.
Help figuring out what works (and stop dwelling on what doesn't)
He needs to be an active part in helping you, but first he's got realize the condition WILL do things to our bodies we can't control. Involve him with doctor appointments, and ask him to help figure it out with you. Share the goals. Does he REALLY think you want to spend the rest of your life wiped out and sleepy as hell?
WHat if it were cancer?
What if it were epilepsy?
I'm sure you would like to think that an altimatum would be rediculous. Narcolepsy is NO DIFFeRENT! It's a proven physical lack of a chemical in your brain. If we could open our heads and show them, we would...
Involve him. Get answers together because if you think about it, you still share the same goals, right? Narcolepsy means you don't have a chemical in your brain that most people do. If he needs to hear it from a guy with degrees on the wall wearing a white coat...so be it. If that is what it takes, do it. Don't have proving him wrong be your goal...Let your goal be getting him to help.
When he finally "Get's it", the next step is to get him to realize he has (in the past, of course) said things that seemed okay to him, but were mildly hurtful to you. When he truly and finally realizes that he has "punished" you for something you have no control over, hopefully he will be able to be more of a help.
Again, don't try to prove him wrong. Get him on your side. Ask for his help. Ask him if he started with a base knowledge that there are things you can not control, it could make the situation much better rather quickly.
Right now he's reactive. Life changes for the better for both of you when he's proactive. If he ever makes a quick run to the store and comes back with a Red Bull, you know you're back on the same page
NEVER apologize for things that are out of your control...to him or anyone.
Love him. Thank him...appreciate him. When he shown the slightest light of understanding the condition, let him know you are thankful that understanding is possible.
If you are thinking the meds are turning you into someone you don't want to be, don't take them. Don't be affraid to tell your doctor, "No...that won't happen".
Don't be affraid to talk to someone. Narcolepsy is the kind of condition that can really mess with your head, and it can be helpful to talk to someone that understands. Therapists can be good, but so can understanding family, understanding friends, understanding pastors. And hopefully soon, a great understanding spouse.
The understanding part of this is important. Seek the ones that get it. Wrap yourself in non-Wakeys. Surround yourself with people that don't think your just "sleepy all the time" or that you just "stay up to late".
Your not alone, Lisa. Many of us know how bad it can suck. We'll be here for you...GLADLY! It's what we are here for. It's a good idea to seek out the understanding people around you...
Love and Prayers
-Stu
You took the time, and were brave enough to open up a lot here. You are searching for some answers, and while that might seem like a little thing, IT'S HUGE!!!! Seriously...give yourself credit for that one.
I'm not a doctor...Geeze, I don't even play one on TV! But I highly recomend you talk to a certified sleep specialist. As well as your Doc's intentions are, if he hasn't mentioned meds like "provigil" or "xyrem" at all to you as a possible option, I'd ask him if he would PLEASE work with a sleep specialist when it comes to figuring out the med situation. DON'T throw him to the curb, but invite him to help with the solution. It's important that even the doctors that THINK they know be educated. It could help others in the future.
What works? Provigil and a little bottle of love I like to call "5 Hour Energy". It's a huge shot of the B Vitamins that makes me one naturally happy camper! But here's the important part of this info...This is what works FOR ME! Some of us here HATE provigil. You might think it's the greatest thing since Red Bull (hehehe...red bull can be cooooool). You might hate it. There are some on the board that love Xyrem. Others just can't do it.
PLEASE talk to a sleep specialist. Ask about Provigil. Ask about Xyrem. If you haven't done the sleep-testing yet, do it! You might have to go to the doctor while sleeeepy. You might have to put up with them (painlessly) gluing wires to your head. They may take your blood. It may be a complete pain in the ARSE, but it is completely worth it! Sleep Specialist can get a wealth of info from these things. The info they get can make your journey to finding the right meds MUCH easier.
Oh...and my very good friend SleepyLisa...Let's get a couple things straight....
1) If you need a Red Bull...There's NOTHING wrong about that! Like I mentioned, I'm a fan of a product called "5 Hour Energy". I hope that if I mention the product enough, they will send me a lifetime supply.
If your going to enjoy the benefits of such drinks and supplements, realize that what you are putting in your body is worthy of paying attention to. This means if your going to be putting massive sugar, frutose, sodium and/or caffiene in your body, it's best to be aware of this and base your decisions on what info you have.
2) As long as you keep convincing yourself that you can't get your masters, you can't get a job, you can't maintain your relationship and you can't raise your son....guess what your not going to be able to do?
OF COURSE YOU CAN DO THESE THINGS! Otherwise you probably wouldn't have brought it up, eh? Not only can you do these things, but you'll probably set a new standard on how they should be done. In order to get where you want to be, you have to stop thinking about where you DON'T want to be.
Don't swap the "can'ts" with the "cans"...I think it's easier than that.
See yourself getting your Masters (How freaking cool is THAT!?!?!). Imagine getting the perfect job (go ahead...I dare ya!). Imagine learning through your condition enough strategy to help your son go above and beyond his (could there BE a better gift a Mom could give her son?).
Allow yourself to think these things! Embrace these thoughts! These are the stars and markings on your map of life...and it's a good feeling to know where you are going, right? NEVER feel guilty for these thoughts (funny how we do that sometimes, isn't it?). Get in touch with the joy involved with these thoughts, and seek 'em out. Hunt your thoughts of ideal happiness ruthlessly...It's a hunt that ALWAYS pays off.
You ask "How bad does it have to get?"
Wow...I remember feeling that.
How GOOD can it get?
THAT'S a tougher one to answer.
I can't wait to see the answer
Even if it takes 60+ years, I bet the answer is going to be REALLY good!
You also said "You don't know how to fix it"
There's nothing to fix. You are not broken. I can only imagine how that feels! Maybe instead of trying to fix it (being your life and situation), can you imagine it more like "getting the tools" to make each day better than the last?
It sounds like you have had a heavy dose of feeling broken. Is there any feeling worse? Face it, everyone has probably felt like the world around them is broken, and can't be fixed.
What I have found in my personal life is that when it all feels like it can't be fixed, I realize that I am basing that thought on stuff that has already happened. I forgot to factor in the stuff that HASN'T happened.
Sure, it could get worse...but if you accept that, you also have to accept that it could also get AMAZINGLY better.
hehehe...and you thought your entry was long
I think an inside definition needs to be created...
Wakey (Way-kee): Noun; Someone that thinks narcoleptics are just making it all up. Someone that thinks our narcolepsy is the exact same thing they experience early Monday morning. Someone that sees us as being "lazy".
There's nothing wrong with your husband, he just doesn't get it. From his stand point, it makes sense. I can understand why your everyday garden-variety Wakey would think what they do. They, too, are also very capable of basing what they know on everything in the past...
My 2 Cents...
Take him to appointments, ESPECIALLY to an appointment with a sleep specialist. This can't be done to prove him wrong. Proving him wrong is not NEARLY as good as having his help. When we get all kinds wacky chemicals in our brains, we need all the help we can get...but you HAVE TO ASK FOR IT!
It's not too much too ask, really...
Help remembering Meds.
Help not letting the condition drag you down.
Help figuring out what works (and stop dwelling on what doesn't)
He needs to be an active part in helping you, but first he's got realize the condition WILL do things to our bodies we can't control. Involve him with doctor appointments, and ask him to help figure it out with you. Share the goals. Does he REALLY think you want to spend the rest of your life wiped out and sleepy as hell?
WHat if it were cancer?
What if it were epilepsy?
I'm sure you would like to think that an altimatum would be rediculous. Narcolepsy is NO DIFFeRENT! It's a proven physical lack of a chemical in your brain. If we could open our heads and show them, we would...
Involve him. Get answers together because if you think about it, you still share the same goals, right? Narcolepsy means you don't have a chemical in your brain that most people do. If he needs to hear it from a guy with degrees on the wall wearing a white coat...so be it. If that is what it takes, do it. Don't have proving him wrong be your goal...Let your goal be getting him to help.
When he finally "Get's it", the next step is to get him to realize he has (in the past, of course) said things that seemed okay to him, but were mildly hurtful to you. When he truly and finally realizes that he has "punished" you for something you have no control over, hopefully he will be able to be more of a help.
Again, don't try to prove him wrong. Get him on your side. Ask for his help. Ask him if he started with a base knowledge that there are things you can not control, it could make the situation much better rather quickly.
Right now he's reactive. Life changes for the better for both of you when he's proactive. If he ever makes a quick run to the store and comes back with a Red Bull, you know you're back on the same page
NEVER apologize for things that are out of your control...to him or anyone.
Love him. Thank him...appreciate him. When he shown the slightest light of understanding the condition, let him know you are thankful that understanding is possible.
If you are thinking the meds are turning you into someone you don't want to be, don't take them. Don't be affraid to tell your doctor, "No...that won't happen".
Don't be affraid to talk to someone. Narcolepsy is the kind of condition that can really mess with your head, and it can be helpful to talk to someone that understands. Therapists can be good, but so can understanding family, understanding friends, understanding pastors. And hopefully soon, a great understanding spouse.
The understanding part of this is important. Seek the ones that get it. Wrap yourself in non-Wakeys. Surround yourself with people that don't think your just "sleepy all the time" or that you just "stay up to late".
Your not alone, Lisa. Many of us know how bad it can suck. We'll be here for you...GLADLY! It's what we are here for. It's a good idea to seek out the understanding people around you...
Love and Prayers
-Stu
#3
merriejean
-
- Members
- 5 posts
Member
- Location:Pennsylvania
- Interests:reading,sleeping (LOL)
Posted 26 March 2008 - 06:23 AM
I don't think it's possible for anyone not dealing with this illness to understand what it's like. I don't think it's reasonable to expect them to. I do think it's reasonable for loved ones to understand that what we're going through is a certifiable, brain malfunction and not just your average run-of-the-mill tiredness.
My husband struggles to deal with my illness because it's not something that can physically be seen, such as a cancer tumor. Search the web for a site that will explain that N is a brain disorder, and not just discuss the "side effects". Find information from a well-known medical body that holds some prestige, rather than just a site with general info. What I did was copy and paste some information onto about a one-page document for by hubby, with just the main info and then gave a good site for him to visit when he has time. This worked well for my husband, not having to read through pages of information. If I have time (and the energy ) I will try to find a good link and add it to this topic.
Gotta run!
My husband struggles to deal with my illness because it's not something that can physically be seen, such as a cancer tumor. Search the web for a site that will explain that N is a brain disorder, and not just discuss the "side effects". Find information from a well-known medical body that holds some prestige, rather than just a site with general info. What I did was copy and paste some information onto about a one-page document for by hubby, with just the main info and then gave a good site for him to visit when he has time. This worked well for my husband, not having to read through pages of information. If I have time (and the energy
) I will try to find a good link and add it to this topic.
Gotta run!
#4
Guest_sleepylisa_*
Guest_sleepylisa_*
-
- Guests
Posted 26 March 2008 - 10:04 AM
Thank you both so much for your input and reading my post. I actually sat here crying and thanking God that not only do you guys understand how I feel, but you even spoke on issues I never addressed in my post but were secretly bothering me. It's like you can read minds or something. Thank you thank you thank you...someone out there knows how I feel!!
I took the MSLT a few weeks ago. My mean sleep latency score was 2.75 mins, and my REM latency was 8 mins. I'm not sure how the scores really work, but one of the websites I visited said anything under 5 for a sleep latency score was considered severe. I have seen my Sleep Specialist twice now, and am seeing him this Friday again to see how the Adderall is working. He's a really nice guy and I will be forever grateful that my PCP referred me to him and he ordered the mslt, but we are just getting to know each other and he seems reluctant to discuss any of the stronger medications (Xyrem, etc.). He said if the adderall didn't work that we could try Provigil, but I'm a little concerned...since it's a different kind of stimulant, does it really work to keep you awake??
Thanks again for your help everybody!! and Stu, are you the administrator on this website?? or just another fellow sleeper?? I've read your other posts too and you are so thoughtful and helpful. On behalf of all of us, thanks!!
I took the MSLT a few weeks ago. My mean sleep latency score was 2.75 mins, and my REM latency was 8 mins. I'm not sure how the scores really work, but one of the websites I visited said anything under 5 for a sleep latency score was considered severe. I have seen my Sleep Specialist twice now, and am seeing him this Friday again to see how the Adderall is working. He's a really nice guy and I will be forever grateful that my PCP referred me to him and he ordered the mslt, but we are just getting to know each other and he seems reluctant to discuss any of the stronger medications (Xyrem, etc.). He said if the adderall didn't work that we could try Provigil, but I'm a little concerned...since it's a different kind of stimulant, does it really work to keep you awake??
Thanks again for your help everybody!! and Stu, are you the administrator on this website?? or just another fellow sleeper?? I've read your other posts too and you are so thoughtful and helpful. On behalf of all of us, thanks!!
#5
axe
-
- Members
- 41 posts
Member
- Gender:Male
- Location:North East Ohio
Posted 26 March 2008 - 11:30 AM
Hello Lisa,
I too have Narcolepsy and have been diagnosesd for several years. I am not too far away from Akron, near Ravenna. My wife and I are ready, willing and able to meet with you and your husband and son at a safe, neutural location such as a mall, restaurant, etc. if you think that it would be helpful. We could also talk on the phone if you want. Just E-mail to let me know.
I used to run a Support Group out of Robinson Memorial Hospital, do some work for the Narcolepsy Network, and work for other groups.
You can reach me at: axeman047@yahoo.com
Ramon M. Werbeach
I too have Narcolepsy and have been diagnosesd for several years. I am not too far away from Akron, near Ravenna. My wife and I are ready, willing and able to meet with you and your husband and son at a safe, neutural location such as a mall, restaurant, etc. if you think that it would be helpful. We could also talk on the phone if you want. Just E-mail to let me know.
I used to run a Support Group out of Robinson Memorial Hospital, do some work for the Narcolepsy Network, and work for other groups.
You can reach me at: axeman047@yahoo.com
Ramon M. Werbeach
#6
MOE2626
-
- Members
- 8 posts
Member
- Interests:SPENING TIME WITH MY FAMILY, READING, CARRIBEAN VACATIONS
Posted 30 April 2008 - 12:47 PM
QUOTE (sleepylisa @ Mar 25 2008, 09:06 PM) <{POST_SNAPBACK}>
Hi, my name is Lisa...I'm new at this so please bare with me...(I tried posting once but I got a message I was posting SPAM?)
I just turned 30 and was diagnosed last month. Finally I have an answer to why I have been "tired" for the last 15 years...I actually thought I was dying of some horrible disease that no one could figure out. Tragically, my new found joy has been short lived. I thought my diagnosis was the hard part of the battle and that now I could get the right meds and get my life back. That has now been the case. My Dr. put me on Ritalin, 30 mg a day. I was feeling more "awake", but the side effects were making me wish I wasn't. I was so mean, agitated, and angry that I couldn't function. Noise irritated me, and I could barely take care of my Autistic 3 yr old son.
My Dr. is trying me on Adderal (XR) 20 mg, which seems to be a little better but the urges to sleep are still very strong and I supplement throughout the day with Red Bull. The worst part is now when night comes and my son is sleeping and I can actually go to bed, now I can't sleep, and wake up a lot during the night. I'm so confused. I am terrified of lowering my dose b/c I am still really sleepy, but I feel panicked when it's the middle of the night and I can't sleep. I'm so confused and desperately trying to change my life...the EDS has been so bad my husband has been thinking of taking our son and leaving me. He's also not very understanding to all this...he thinks I "created" this diagnosis of Narcolepsy as an excuse to sleep more...he just thinks I'm lazy and a bad parent. I keep telling him "Give these new meds a chance" or "Just give me one more month to figure this out".
I know this is really long and thank you for reading this far. I have just been so tired for so long and finally know the reason, but don't know how to fix it...now my relationship is on the line. Does anyone out there have any suggestions on meds?? I want to try Desoxn but my Dr. says that's very rare that someone needs it and he only has a few patients on it...only the worse cases. I feel like my EDS is so out of control, it's ruining my life...I can't get a job, go back to get my Master's, raise my son or maintain my relationship. How bad does it have to get?? It can't get much worse? There has to be someone who can help me!! Please.
I just turned 30 and was diagnosed last month. Finally I have an answer to why I have been "tired" for the last 15 years...I actually thought I was dying of some horrible disease that no one could figure out. Tragically, my new found joy has been short lived. I thought my diagnosis was the hard part of the battle and that now I could get the right meds and get my life back. That has now been the case. My Dr. put me on Ritalin, 30 mg a day. I was feeling more "awake", but the side effects were making me wish I wasn't. I was so mean, agitated, and angry that I couldn't function. Noise irritated me, and I could barely take care of my Autistic 3 yr old son.
My Dr. is trying me on Adderal (XR) 20 mg, which seems to be a little better but the urges to sleep are still very strong and I supplement throughout the day with Red Bull. The worst part is now when night comes and my son is sleeping and I can actually go to bed, now I can't sleep, and wake up a lot during the night. I'm so confused. I am terrified of lowering my dose b/c I am still really sleepy, but I feel panicked when it's the middle of the night and I can't sleep. I'm so confused and desperately trying to change my life...the EDS has been so bad my husband has been thinking of taking our son and leaving me. He's also not very understanding to all this...he thinks I "created" this diagnosis of Narcolepsy as an excuse to sleep more...he just thinks I'm lazy and a bad parent. I keep telling him "Give these new meds a chance" or "Just give me one more month to figure this out".
I know this is really long and thank you for reading this far. I have just been so tired for so long and finally know the reason, but don't know how to fix it...now my relationship is on the line. Does anyone out there have any suggestions on meds?? I want to try Desoxn but my Dr. says that's very rare that someone needs it and he only has a few patients on it...only the worse cases. I feel like my EDS is so out of control, it's ruining my life...I can't get a job, go back to get my Master's, raise my son or maintain my relationship. How bad does it have to get?? It can't get much worse? There has to be someone who can help me!! Please.
HI LISA,'
I FEEL FOR U & UNDERSTAND! FIRST OF ALL, MY DOC PUT ME ON PROVIGIL RIGHT AWAY. HE GAVE ME RITALIN, BUT ONLY WANTED ME TOT TAKE THAT ON THE DAYS I WORK MY 2ND JOB AT NIGHT. I HEAR U..I HATE IT...I FEEL MY HEART RACING, B UT I CAN STAY VERY ALERT, BUT ONLY FOR ABOUT 3-4 MORE HOURS..
I WOULD SUGGEST U CALL YOUR DOC..TODAY! AND ASK HIM IF U COULD TAKE PROVIGIL.IT IS VERY EXPENSIVE, AND U PROBABLY AHVE TO GO THRU ALOT OF CRAP WITH YOUR INS COMPANY TO GET TO PAY, BUT IT'S WORTH IT! ASK YOUR DOC FOR SAMPLES NOW!
I DON'T LIKE THE IDEA OF HIM GIVING U THE ADD DRUGS RIGHT AWAY..MY DOC SAID THERE ARE MANY RISKS TO THOSE DRUGS, UNLIKE PROVIGIL....
DO U SEE A SLEEP SPECIALIST? WHAT DOES YOUR DOC SPECIALIZE IN? IF HE/SHE IS JUST A GP ( GENERAL PRACTIIONER) U SHOULD 'RUN' TO SEE A SLEEP SPECIALIST!
IT'S SO GOOD U ARE EDUCATING YOURSELF! MY HUBBY, AT TIMES, HAS GOT ON MY CASE ABOUT MY SLEEPING. BUT FOR THE MOST PART HE DEALS WITH IT, AS I AHVE TO. I'M SO SORRY THAT YOUR HUBBY IS THREATENING TO LEAVE U, ALL CAUSE OF 'NARC.' PERHAPS HE SHPOULD GO TO THE DOC WITH U, SO THE DOC CAN EXPLAIN WHAT 'NARC' TRULY IS. IT IS NOT ALL IN OUR HEADS! THAT WAY HE CAN HEAR THE MEDICAL EXPLANATION FOR IT..I THINK IT MIGHT HELP!
AS FOR WORKING...CAN U NOT WORK CAUSE OF THE 'NARC?' IT IS VERY HARD, BUT WHY NOT WORK PART TIME..PERHAPS IN THE EVENING, WHEN HE IS HOME. THAT WAY U CAN GET OUT OF THE HOUSE, AWAY FROM YOUR FAMILY AND WILL BE HELPINGTO CONTRIBUTE TO THE FAMILY..PERHAPS THAT IS WHY YOUR HUBBY IS SO UPSET.....
I FIND I AM WAKING ALOT AT NIGHT..DOESN'T HELP DURING THE DAY, FOR SURE!! I DO FIND TAKING MELATONIN ( I TAKE 2 early) will help give me a good nights sleep. PLUS, U DON'T WAKE UP GROGGY AS WITH TYLENOL PM OR A SLEEP PILL!
PLEASE KEEP IN TOUCH & LET ME KNOW WHAT YOUR DOC SAYS ABOUT THE PROVIGIL. CALL NOW!
MAUREEN
FROM MASS
#7
MOE2626
-
- Members
- 8 posts
Member
- Interests:SPENING TIME WITH MY FAMILY, READING, CARRIBEAN VACATIONS
Posted 30 April 2008 - 12:49 PM
QUOTE (MOE2626 @ Apr 30 2008, 06:47 PM) <{POST_SNAPBACK}>
HI LISA,'
I FEEL FOR U & UNDERSTAND! FIRST OF ALL, MY DOC PUT ME ON PROVIGIL RIGHT AWAY. HE GAVE ME RITALIN, BUT ONLY WANTED ME TOT TAKE THAT ON THE DAYS I WORK MY 2ND JOB AT NIGHT. I HEAR U..I HATE IT...I FEEL MY HEART RACING, B UT I CAN STAY VERY ALERT, BUT ONLY FOR ABOUT 3-4 MORE HOURS..
I WOULD SUGGEST U CALL YOUR DOC..TODAY! AND ASK HIM IF U COULD TAKE PROVIGIL.IT IS VERY EXPENSIVE, AND U PROBABLY AHVE TO GO THRU ALOT OF CRAP WITH YOUR INS COMPANY TO GET TO PAY, BUT IT'S WORTH IT! ASK YOUR DOC FOR SAMPLES NOW!
I DON'T LIKE THE IDEA OF HIM GIVING U THE ADD DRUGS RIGHT AWAY..MY DOC SAID THERE ARE MANY RISKS TO THOSE DRUGS, UNLIKE PROVIGIL....
DO U SEE A SLEEP SPECIALIST? WHAT DOES YOUR DOC SPECIALIZE IN? IF HE/SHE IS JUST A GP ( GENERAL PRACTIIONER) U SHOULD 'RUN' TO SEE A SLEEP SPECIALIST!
IT'S SO GOOD U ARE EDUCATING YOURSELF! MY HUBBY, AT TIMES, HAS GOT ON MY CASE ABOUT MY SLEEPING. BUT FOR THE MOST PART HE DEALS WITH IT, AS I AHVE TO. I'M SO SORRY THAT YOUR HUBBY IS THREATENING TO LEAVE U, ALL CAUSE OF 'NARC.' PERHAPS HE SHPOULD GO TO THE DOC WITH U, SO THE DOC CAN EXPLAIN WHAT 'NARC' TRULY IS. IT IS NOT ALL IN OUR HEADS! THAT WAY HE CAN HEAR THE MEDICAL EXPLANATION FOR IT..I THINK IT MIGHT HELP!
AS FOR WORKING...CAN U NOT WORK CAUSE OF THE 'NARC?' IT IS VERY HARD, BUT WHY NOT WORK PART TIME..PERHAPS IN THE EVENING, WHEN HE IS HOME. THAT WAY U CAN GET OUT OF THE HOUSE, AWAY FROM YOUR FAMILY AND WILL BE HELPINGTO CONTRIBUTE TO THE FAMILY..PERHAPS THAT IS WHY YOUR HUBBY IS SO UPSET.....
I FIND I AM WAKING ALOT AT NIGHT..DOESN'T HELP DURING THE DAY, FOR SURE!! I DO FIND TAKING MELATONIN ( I TAKE 2 early) will help give me a good nights sleep. PLUS, U DON'T WAKE UP GROGGY AS WITH TYLENOL PM OR A SLEEP PILL!
PLEASE KEEP IN TOUCH & LET ME KNOW WHAT YOUR DOC SAYS ABOUT THE PROVIGIL. CALL NOW!
MAUREEN
FROM MASS
I FEEL FOR U & UNDERSTAND! FIRST OF ALL, MY DOC PUT ME ON PROVIGIL RIGHT AWAY. HE GAVE ME RITALIN, BUT ONLY WANTED ME TOT TAKE THAT ON THE DAYS I WORK MY 2ND JOB AT NIGHT. I HEAR U..I HATE IT...I FEEL MY HEART RACING, B UT I CAN STAY VERY ALERT, BUT ONLY FOR ABOUT 3-4 MORE HOURS..
I WOULD SUGGEST U CALL YOUR DOC..TODAY! AND ASK HIM IF U COULD TAKE PROVIGIL.IT IS VERY EXPENSIVE, AND U PROBABLY AHVE TO GO THRU ALOT OF CRAP WITH YOUR INS COMPANY TO GET TO PAY, BUT IT'S WORTH IT! ASK YOUR DOC FOR SAMPLES NOW!
I DON'T LIKE THE IDEA OF HIM GIVING U THE ADD DRUGS RIGHT AWAY..MY DOC SAID THERE ARE MANY RISKS TO THOSE DRUGS, UNLIKE PROVIGIL....
DO U SEE A SLEEP SPECIALIST? WHAT DOES YOUR DOC SPECIALIZE IN? IF HE/SHE IS JUST A GP ( GENERAL PRACTIIONER) U SHOULD 'RUN' TO SEE A SLEEP SPECIALIST!
IT'S SO GOOD U ARE EDUCATING YOURSELF! MY HUBBY, AT TIMES, HAS GOT ON MY CASE ABOUT MY SLEEPING. BUT FOR THE MOST PART HE DEALS WITH IT, AS I AHVE TO. I'M SO SORRY THAT YOUR HUBBY IS THREATENING TO LEAVE U, ALL CAUSE OF 'NARC.' PERHAPS HE SHPOULD GO TO THE DOC WITH U, SO THE DOC CAN EXPLAIN WHAT 'NARC' TRULY IS. IT IS NOT ALL IN OUR HEADS! THAT WAY HE CAN HEAR THE MEDICAL EXPLANATION FOR IT..I THINK IT MIGHT HELP!
AS FOR WORKING...CAN U NOT WORK CAUSE OF THE 'NARC?' IT IS VERY HARD, BUT WHY NOT WORK PART TIME..PERHAPS IN THE EVENING, WHEN HE IS HOME. THAT WAY U CAN GET OUT OF THE HOUSE, AWAY FROM YOUR FAMILY AND WILL BE HELPINGTO CONTRIBUTE TO THE FAMILY..PERHAPS THAT IS WHY YOUR HUBBY IS SO UPSET.....
I FIND I AM WAKING ALOT AT NIGHT..DOESN'T HELP DURING THE DAY, FOR SURE!! I DO FIND TAKING MELATONIN ( I TAKE 2 early) will help give me a good nights sleep. PLUS, U DON'T WAKE UP GROGGY AS WITH TYLENOL PM OR A SLEEP PILL!
PLEASE KEEP IN TOUCH & LET ME KNOW WHAT YOUR DOC SAYS ABOUT THE PROVIGIL. CALL NOW!
MAUREEN
FROM MASS
